Friday, April 09, 2010

Headache Action Alert: Keep Pushing for More Funding for Headache Disorders Research

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Let's say you've been writing to the people who represent you in Washington each time you receive an action alert from the Alliance for Headache Disorders Advocacy (AHDA), but don't feel like you're really making a difference. Think again. We *are* making a difference, and we must keep the momentum going to turn these efforts into real change in the form of increased funding for headache disorders research.

As a result of the lobbying efforts of the generous people of the AHDA, the National Institutes of Health is holding a two-day meeting in mid-May to "develop a long-term strategy to support and promote headache research and develop Headache Disorder Research Benchmarks." To make sure something comes of this meeting, Sen. Patrick Leahy and Rep. Peter Welch are sending a letter to the NIH director, Dr. Francis Collins, and Secretary of Health and Human Services, Kathleen Sebelius (of my home state of Kansas!), to demonstrate their support. The AHDA and migraineurs all over the U.S. need you to take a quick moment to ask your Congressional representatives to sign on to the letter to give it as much impact as possible.

It truly couldn't be easier to write your federal legislators on this topic. Simply follow the link below, add a little custom content to the form letter about how you and your loved ones are personally impacted by headache disorders and why you/we need increased research funding. They're done all the hard work for us. Please, please, please do this and ask your loved ones to do it, too. Put something up on Facebook and send out an e-mail. It takes almost no effort for us to do these little things, but they can have a big impact. People in power are starting to take us seriously, but this is no time to stop.

Alliance for Headache Disorders Advocacy April 2010 Action Alert

Paula Kamen, author of All in My Head, recently wrote a great piece for Ms. Magazine about the inadequate level of research funding for migraine disorder: Migraine: The North Korea of Disabilities. Hopefully getting some attention in a more widely-read publication will help these efforts, too.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.