Monday, January 17, 2011

Help! Twitter Migraine Chat


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We were supposed to have our monthly Twitter Migraine Chat for January this past Thursday. We had two enthusiastic participants show up and your fearless ringleader (ahem, me) stood them up. I worry the Twitter Migraine Chat is lacking soul and want all of your ideas about where it might go from here.

When the chat started off being weekly it quickly became clear to me that I couldn't commit enough time to sustain that level of frequency. But without a weekly time it's been difficult for all of us to remember it exists and get in the habit of logging on at the right time. As a result it feels like the chat is dying a slow death, and I'm a big part of the reason it's struggling. I hate that!

I want to be able to chat with you guys and create a chance for migraineurs to get to know each other and swap stories. So what do you, my pals out there who use Twitter and like the idea of chatting, think we should do? What time of day, what day of the week, how often, etc? I welcome your suggestions. To be perfectly frank, I'm begging for them. I know there's no perfect scenario for everyone, but I'd like to move toward something that seems to meet the needs and wants of our community.


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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain and depression. Please consult your own health care providers for advice on your unique situation.